Do you have Inflammatory Bowel Disease (IBD)? Are you living with Crohn's
Disease or UIcerative Colitis? Do you know someone who is living with either
disease?
Welcome to IBDLiving.com! We have created this site as a place for those living with
Crohn's Disease and Ulcerative Colitis to be supported, gather information, and share
information. We hope that you will find everything you need and want to know about IBD
here. We have a growing support group for everyone on our Message Board where you
will find more information and up to date news relating to everything IBD!
Our new page on Coping is up and running!!! You can find how many people cope with
the emotional challenges of living with IBD. The page is filled with personal challenges
and coping skills written by us and many other people living with Crohn's and UC.
A little about us...We are Southern California sisters who have lived with Crohn's Disease
for years. Amy, 30, has had Crohn's Disease for nine years. Casey, 33, has lived with
Crohn's Disease for over six years. We have more than 5 people in our family with
Crohn's Disease, which is remarkable in itself. We are blessed by our faith, families,
friends and a fabulous local CCFA support group that has become our second family.
You can read our full stories on the Personal Stories page. You will also find personal
stories written by other people living with IBD.
On the Medicines page you can find links to almost all IBD related medicines. The links
will take you to the drugs site so you can obtain all the info you need on your meds or
prospective meds. The Surgeries page provides a brief overview of surgical procedures
relating to IBD. We will be updating the Surgery page with more information soon!
The Diet page gives diet examples of liquid diets, soft foods diets and other diet options.
You can also visit the Tips and Tricks page to find clever ideas on how we and others live
everyday with IBD.
We hope that these pages of information and ideas, along with the other site pages, will
help you or your friend or family member with IBD. Whether newly diagnosed or a long
time IBD'er, there is something for everyone here.
We are absolutely amazed at the response this site has had. Since we launched in
January 2007, we have had the pleasure of meeting great people from all over the world.
We are inspired to grow and reach out to the IBD community. We have gained so much
ourselves from the people we meet and from the resilience and strength that we find in
each individual. Thank you!
We want everyone that is affected by Crohn's Disease and Ulcerative Colitis to live a
better life. That better life begins now.
Through IBDLiving.com we begin to live again.
Disease or UIcerative Colitis? Do you know someone who is living with either
disease?
Welcome to IBDLiving.com! We have created this site as a place for those living with
Crohn's Disease and Ulcerative Colitis to be supported, gather information, and share
information. We hope that you will find everything you need and want to know about IBD
here. We have a growing support group for everyone on our Message Board where you
will find more information and up to date news relating to everything IBD!
Our new page on Coping is up and running!!! You can find how many people cope with
the emotional challenges of living with IBD. The page is filled with personal challenges
and coping skills written by us and many other people living with Crohn's and UC.
A little about us...We are Southern California sisters who have lived with Crohn's Disease
for years. Amy, 30, has had Crohn's Disease for nine years. Casey, 33, has lived with
Crohn's Disease for over six years. We have more than 5 people in our family with
Crohn's Disease, which is remarkable in itself. We are blessed by our faith, families,
friends and a fabulous local CCFA support group that has become our second family.
You can read our full stories on the Personal Stories page. You will also find personal
stories written by other people living with IBD.
On the Medicines page you can find links to almost all IBD related medicines. The links
will take you to the drugs site so you can obtain all the info you need on your meds or
prospective meds. The Surgeries page provides a brief overview of surgical procedures
relating to IBD. We will be updating the Surgery page with more information soon!
The Diet page gives diet examples of liquid diets, soft foods diets and other diet options.
You can also visit the Tips and Tricks page to find clever ideas on how we and others live
everyday with IBD.
We hope that these pages of information and ideas, along with the other site pages, will
help you or your friend or family member with IBD. Whether newly diagnosed or a long
time IBD'er, there is something for everyone here.
We are absolutely amazed at the response this site has had. Since we launched in
January 2007, we have had the pleasure of meeting great people from all over the world.
We are inspired to grow and reach out to the IBD community. We have gained so much
ourselves from the people we meet and from the resilience and strength that we find in
each individual. Thank you!
We want everyone that is affected by Crohn's Disease and Ulcerative Colitis to live a
better life. That better life begins now.
Through IBDLiving.com we begin to live again.
IBD LIVING
Begin to Live Again
We wish good health and happiness to all!!!
-Casey and Amy
-Casey and Amy
Last Updated: 5/10/08 |
IBD Living©2007-2008, All Rights Reserved. No Part of this website shall be copied or used without the expressed written consent from the owners of IBD Living. |
IBDLiving
Merchandise:
Merchandise:
| Take Steps with Haley for Crohn's and Colitis - IBDLiving is featuring Haley in Orange County, CA as our star of the Orange County CCFA walk on June 29th this year! Haley is 11 years old and was diagnosed with Crohn's disease at age 6. Haley has struggled with pain and horrible debilitating symptoms. She has gone through so many medicines, hospital visits, tests and missed so much school. Right now Haley is taking Humira injections and methotrexate, a chemotherapy drug to help her control her Crohn's symptoms. She has been battling the disease with the help of her family, wonderful mom Allyson and many skilled doctors. Haley is a very brave, strong and courageous little girl who we can all find inspiration in! We are so honored to be able to call her our friend and we are delighted to support Haley in her effort to cure IBD. Please help Haley find a cure for IBD and donate to her Walk page for the CCFA to find a cure for this dreadful disease!. http://www.active.com/donate/takestepsOC07/Team-Haley08 |
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| News Updated 6 times a day! |
| Take Steps with IBDLiving to find a cure for IBD. Click Here! |
| Haley at The Painted Turtle Camp for Kids with IBD |
The following pics were taken at the CCFA Take Steps Kick-Off party on 4/26/08.
What a huge success it was! IBDLiving was honored to be a part of this event and
share our site with all in attendance. We will continue to support the CCFA and all that it
does!
What a huge success it was! IBDLiving was honored to be a part of this event and
share our site with all in attendance. We will continue to support the CCFA and all that it
does!
Casey and Amy
| Jon, Casey, Matt, Amy and Peter. Our CCFA OC Support Group Friends! |
| Casey, Allyson, Haley and Amy. We adore them! |
| Sign up for the free IBDLiving quarterly Newsletter! CLICK HERE! |
| Pete Challenges Himself to Change His Life and All of Ours! |
I am just one of millions of Americans living with Crohn's disease.
There is, currently, no cure for Crohn's. The Crohn's and Colitis
Foundation of America (CCFA) is on a mission to cure and prevent
this disease. CCFA is an organization with an impressive track
record of funding cutting-edge studies at major medical institutions
and financing underdeveloped areas of research. This particular run
means more to me then just finding a cure. It's an opportunity for me
to get back into shape after a long flare up that lasted two years.
Over those two years I tried numerous medications and fought to
keep my weight up. Five months ago I weighed 132lbs and I was
ready to have surgery a second time. Luckily I decided to try one
more drug before surgery, even though it meant staying attached to
an IV bag for 3 months to get my nutrition. The drug seems to be working for now, but I’m
worried that I could have another flare up at anytime. Lots of people I talked to that have
tried this drug and didn’t have a horrible immediate reaction to it, told me it only kept them
in remission for about 9 months. I'm currently able to eat enough food to keep my weight
up and I feel better than I have in a long time so I’m taking advantage of this period of good
health by running to raise money. Trying lots of different drugs and contemplating when the
right time is for surgery is the norm for people living with Crohn’s. Please support me and
CCFA by giving generously! It's easy; you can make a donation online. A minimum of 80¢
per dollar donated to CCFA goes directly to research and patient support, and your
contribution is tax deductible. The Team Challenge-Crohn's and Colitis program is training
me to run a half marathon while helping the Foundation raise funds to find a cure for Crohn’
s disease and ulcerative colitis. Our team will be completing the Napa to Sonoma Wine
Country Half Marathon on July 20, 2008 where we will be greeted with 13.1 miles of
picturesque scenery, warm wind through the grape fields and one of the BEST half
marathon finishes in the country!
We support our friend Pete in his awesome challenge and we hope that you will too!
Please clink on the link below to support him and raise money to cure IBD!!!
There is, currently, no cure for Crohn's. The Crohn's and Colitis
Foundation of America (CCFA) is on a mission to cure and prevent
this disease. CCFA is an organization with an impressive track
record of funding cutting-edge studies at major medical institutions
and financing underdeveloped areas of research. This particular run
means more to me then just finding a cure. It's an opportunity for me
to get back into shape after a long flare up that lasted two years.
Over those two years I tried numerous medications and fought to
keep my weight up. Five months ago I weighed 132lbs and I was
ready to have surgery a second time. Luckily I decided to try one
more drug before surgery, even though it meant staying attached to
an IV bag for 3 months to get my nutrition. The drug seems to be working for now, but I’m
worried that I could have another flare up at anytime. Lots of people I talked to that have
tried this drug and didn’t have a horrible immediate reaction to it, told me it only kept them
in remission for about 9 months. I'm currently able to eat enough food to keep my weight
up and I feel better than I have in a long time so I’m taking advantage of this period of good
health by running to raise money. Trying lots of different drugs and contemplating when the
right time is for surgery is the norm for people living with Crohn’s. Please support me and
CCFA by giving generously! It's easy; you can make a donation online. A minimum of 80¢
per dollar donated to CCFA goes directly to research and patient support, and your
contribution is tax deductible. The Team Challenge-Crohn's and Colitis program is training
me to run a half marathon while helping the Foundation raise funds to find a cure for Crohn’
s disease and ulcerative colitis. Our team will be completing the Napa to Sonoma Wine
Country Half Marathon on July 20, 2008 where we will be greeted with 13.1 miles of
picturesque scenery, warm wind through the grape fields and one of the BEST half
marathon finishes in the country!
We support our friend Pete in his awesome challenge and we hope that you will too!
Please clink on the link below to support him and raise money to cure IBD!!!
